CARE About Fibroids Executive Director Jenny Rosenberg Participates in BWHI Fireside Chat on Empowering Women with Uterine Fibroids
On Jul. 30, CARE About Fibroids Executive Director Jenny Rosenberg participated in a fireside chat sponsored by the Black Women's Health Imperative (BWHI) entitled "Suffering in Silence: Our Fight with Uterine Fibroids." The chat, which also featured The White Dress Project Founder Tanika Gray Valburn, Melissa Harris-Perry, and Cynthia Bailey touched on a wide array of issues pertaining to uterine fibroids, including disease management, treatment, and black women's experiences with fibroids.
During the conversation, Rosenberg highlighted new legislation championed by CARE About Fibroids that would provided much-needed research and education support on uterine fibroids. Sponsored by Sen. Kamala Harris (D-CA), Rep. Yvette Clarke (D-NY), and Rep. Robin Kelly (D-IL), the Uterine Fibroid Research and Education Act directs the National Institutes of health to "expand, intensify, and coordinate" programs and research on this disease.
"This is a huge step forward,” said Rosenberg, “but […] the community has to step up and make sure that there are more senators to support her bill, to make sure it gets through the Senate, to make sure that there is companion legislation in the House, and that we have a champion in the White House for women’s causes who will sign the legislation into law. […] We have to find leaders that are for women’s health and will put weight behind issues that will help women move forward.”
Additionally, Rosenberg went onto mention how CARE About Fibroids supports women through the new Responsum for Fibroids platform and app. This new knowledge app and empowerment platform that provides useful information, resources, and a moderated community chat centered around uterine fibroids, providing patients with the tools they need to take control of their health.
“Recently, we’ve partnered with Responsum Health to create an app for women and an online community, and Tanika [Gray Valbrun, of The White Dress Project] is part of this as well,” Rosenberg stated. “[W]omen can go online, they’re on their app, and immediately have a community, information, [an] updated Newsfeed about research and innovation in fibroids, but [it’s] also…a way to keep up with their own symptoms, keep a log, so it is right there when they go into the doctor’s office. Because again, it’s about empowering women.”